Thursday, June 26, 2014

Day 4 Stem Cell Surgery Post Op

The past eight hours feel like a week. We are glad to report that we safely returned back to the oasis called Casa De Los Bedlamitos.  To cut to the chase, Hayden did great. Thank you to all of you who generously sponsored Hayden's treatment and for all of you who said so many kind messages and supplication of humble prayers that went out to Hayden.  You have eased our minds and lightened our burdens. 

Today we planned and left early with double the amount of travel time to ensure that we would make it to the hospital on time.  We had it mapped out. We thought we had it all figured out. Then we missed our exit.  We were terribly lost and that is the typical excitement any American tourist has while trying to drive in a foreign county.  
Fortunately,  my cell phone worked and I was able to contact Grace and Abel with Nova Stem Cells and they came to our rescue to find us and to guide us to the hospital. That is the kind of compassion and service you could never expect to get in the US.

At the hospital Grace helped us check in. We had the whole crew. The hospital was very clean and organized and professional. We met with the neurologist, the doctor of internal medicine, the surgeon, and Abel is the biochemist that arranged us altogether.  Hayden was evaluated just like he is at his spina bifida clinic in the US prior to the procedure. He was given sedation which he reacted well to.  And then it was time for this Momma to say goodbye at the OR. My reaction was still the same whether it be in the US or in Mexico saying goodbye to your son to get surgery is terrible.

Scott took the kids across the street to get lunch while Hayden was in surgery.  By the time they were back, Hayden was already out and recovering from sedation.  Hayden always has a hard time recovering from sedation. He is disoriented, cries and vomits.  

At this moment in time the noticeable changes were that he immediately was using his right hand. For those of you that know Hayden he is left-handed and very weak on his right side. There was also noticeable circulation improvement in his feet.  Typically his feet are blue or cold, but after the treatment they were very pink and hot to the touch. From his knees down they were noticeably pink on both legs. A rash started to develop and within a half an hour with an injection of Benadryl the rash subsided.

Abel told us that Hayden actually received stem cells from five donated umbilical cords. He had a lumbar puncture as well as an IV. It is unclear at this time what benefits we may see over the next few months. We will report any negative as well as hopefully many positive effects that we may notice.

Although Hayden was exhausted from vomiting and the entire experience, we knew he was feeling better when he requested chocolate ice cream. Subsequently, we were released.  Abel and Grace graciously guided us back to the highway so that we would not have anymore misguided adventures.  We have had a relaxing evening getting to talk with some family members and making sure Hayden is taking it easy.  Curious George was 1st on the menu, while enjoying the tranquility of the Pacific Ocean.  I know that we will all sleep well tonight and tomorrow brings a new day of possibly some new progressions with Hayden.  
Driving through Rosarito.  

IMI Children's Hospital in Tijuana where we were treated so well.

Statue of President Lincoln in the center of the round about next to the Hospial.  
Hayden Pre-Op
Lunch with Grace, Garrett and Hanna at a local Mexican Food joint.  Great tacos, giving Adrienne and Hayden a break.
Post-Op
Garrett passing time running the hall in front of Hayden's room #3
Abel and Grace of Nova Stem Cells
Happy Hayden with his M&M's
Most of the wonderful medical team.  God bless you all for taking care of our precious Hayden and us.  Hayden did have his thumb up until he realized that wasn't chocolate ice cream.

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