Saturday was particularly hard. Everything has been going along smoothly and better than expected when Saturday evening, Hayden had two seizures, frequent daily low-grade fever's, and an infection on one of his drainage sites. This was completely unexpected because the morning he looked so good that we even removed his epidural and said goodbye to my mother who had been helping with the kids all week. We thought everything was going better than expected.
Our wonderful urologist made a special trip in to visit again due to the unexpected set back with his health. He confirmed that it was infection and ordered blood labs as well as bacterial labs to be drawn on the infection site that take 48 hours to grow. His blood cell count all looks normal. They are applying to topical anti-bacterial creams to his remaining drains and tubes.