Sunday, February 23, 2014

Hayden Turns 5!

So happy to celebrate a happy time with my boy who has endured so much.  He is going to have a great year being 5!

Thank you to so many of you who have given him the best birthday present, the gift of healing. We will continue to raise funds until his treatment date 6/26/14.  

If you would like to make a birthday donation for stem cell treatment please see:

Health update:  Hayden has been suffering for the past month with an ongoing scrotum infection.  It is unclear why he has the infection and it has not been eliminated from the 3 weeks of antibiotics.  He is now on his 4th round after many doctor visits and surgery is being talked about.  Surgery to re-repair a hernia and possible testicular surgery.  Urilogical issues are one of the many "secondary" issues that effect him, and many with Spina Bifida, on a regular daily basis due to nerve damage at the spine.  I will update as we learn more.

Tuesday, February 4, 2014

Celebrating a New Year and a new start!

Please help us celebrate Hayden's 5th birthday with the gift of Healing.

We're raising money for expenses for a trip to Mexico for Stem Cell Treatment and to make the most of the trip by doubling it up with a trip north of the border to Anaheim CA/Disneyland Hotel for the National Spina Bifida Conference in July 2014. After years of saving and researching the benifits and medical facilities for treatment, we have decided to go forward with a leap of faith. 2013 was costly (financially, emotionally & physically) for our son, Hayden, having 5 surgeries in just 6 months. All documented on his . While Hayden will likely have many more surgeries in his future, stem cells may help make that number a little less and his body a little stonger. 

Stem cell infusion gives us hope for healing and recovering what has been lost physically and neurologically to rebuild and regenerate the damage caused by surgery and scar tissue. Disneyland, post surgery, will also bring emotional healing meeting with our fellow Spina Bifida community with friends gathering from around the country. Many of whom we have "known" for years but never met.

Stem Cells: The treatment in Mexico is from Nova Cells Institute Mexico and is customized to meet the needs of the patient. Stem cell treatment is being done in the US but is not yet available for children with Spina Bifida. Stem cells are extracted from cord blood, placetal tissue and Wharon's jelly. In the case of Spina Bifida, the stem cells are then primed to change into neurospheres -- the types of cells that build and repair nerves. The stem cells are also programmed to target the signals that bodies send out when there is an injury. The stem cells are then injected via lumbar puncture and IV under a general anesthesia. The entire treatment takes 2 to 4 hours and is a day procedure. Hosts pick-up the family from San Diego and bring them to Tijuana and provide translation and support for the day. Once the treatment is over and the patient is stable, the same hosts drive the family back to San Diego.For more information about the treatment via Nova Cells, please review their website at . 

Conference: Attending this conference means so much to us. The huge amount of information from medical professionals accross the country as well as being surrounded by other families that look like ours brings joy and emotional healing having an easy, accessible place to learn and vacation. 

Please feel free to read our blog to learn more about our family.

Thank you for any birthday donation you make in helping make this a very happy 2014!