Hayden's recovery has been very painful. One night, we had the bright idea to give him Valium. That should be something that goes along with the pain management for kids on a regular surgical basis. Valium is somewhat of an amnesia drug. It makes him relax and have a much better time and less anxious each time he has to visit the hospital. I would highly recommend Valium for all to be part of the treatment plan. He slept better and was not as tense.
It broke our heart when we heard Hayden's reaction when the G.I. (Gastroenterologist) on-call made rounds. When he entered, the first thing Hayden said was please don't hurt me.😒
Our urology team is absolutely fantastic. They have coordinated great care for us. On the rounds, the last day in ICU was a girl from Texas A& M doing an apprenticeship for the urology department. She also uses a wheelchair. That made our day.
On the third day following surgery, Hayden had progressed enough to graduate from ICU to a regular surgical floor. On day four of no food, the doctors started feeding him through blood nutrients. Due to no bowel sounds 3 days after surgery, eating is risky. However at the 4th day without food, the doctor let him start with a chocolate McDonald milkshake as he refused ice chips and every other beverage. He did well and will continue to take it slow.
The best part of the day was the visit from family. Hayden was so excited to see the kids and Gaga. We have started to see the progress and healing as he has finally started to talk and laugh. Maybe we can all let down and let go a little. The doctor said that he is doing far better than he anticipated.
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