My personal objective has always been to give Hayden confidence in the body that God created for him. Hayden‘s body is not currently built for walking. He has hip and knee contractures, brittle bones and a dislocated hip. The purpose for us to explore the study was to see if he could get his brain/body an awareness connection. It was also to give him confidence in his ability to use and control his body independently. This was a fantastic opportunity made possible through the many good people that orchestrated this study and our insurance for investing not only in Hayden but for new technology to benefit so many others.
I started this blog for updates for our out of town family and friends who want to follow our daughter, Hanna (12/06), and son, Hayden (2/09), who was diagnosed with Spina Bifida and Arnold Chiari II brain malformation and our newest son, Garrett (1/13).
We started this blog to let friends and family know of our medical news from IVF and now our family history.