Tuesday, May 15, 2018

Surgery #23 Calcaneal Cavis Bilateral Foot Surgery

Hayden’s favorite movie is “The Greatest Showman”. Not because the music is great.  Not because the acting is wonderful.  Not because it is well produced.  It is his favorite movie because it is a story of HIS people.

Hayden’s foot surgery has been on the books for quite some time. It is a surgery that has made him very anxious over the past few months.  #brokenparts #weareglorious #thisISme #greatestshowman





I am very thankful to his elementary school counselor, Mrs. Lucas, for meeting with Hayden and discussing his concerns.   He had been making all the kids at school worried for him too.  It is so sweet to see how sympathetic other children can be.

Hayden is very familiar with going to the hospital.  He cried at his last appointment with his neurosurgeon just because he was so very anxious to be around doctors these days.  It all ended well and he was relieved to give him a hug.  I am so proud of him for going to his school counselor for his concerns. I had no idea of the extent of his anxiety until the counselor told me he had approached her independently.  I was so proud of his self advocacy and for having an approachable school counselor.

This was a relatively minor surgery considering all that he’s been through in the past.  Now that he is older and more expressive he is more aware and anticipates what happens after visiting with doctors.

We have a wonderful team of doctors that care for Hayden.  Today we added a new member to Team Trigg, Dr. Dahne.  He is bright and kind.  He also cast his doll to look like him.  Hayden is excited to get his friends to sign his casts.  He said, “they’ll see my orange casts coming and going.”



He lyrics to the song This Is Me explains so much more than I can:

I am not a stranger to the dark
Hide away, they say
'Cause we don't want your broken parts
I've learned to be ashamed of all my scars
Run away, they say
No one'll love you as you are
But I won't let them break me down to dust
I know that there's a place for us
For we are glorious
When the sharpest words wanna cut me down
I'm gonna send a flood, gonna drown them out
I am brave, I am bruised
I am who I'm meant to be, this is me
Look out 'cause here I come
And I'm marching on to the beat I drum
I'm not scared to be seenc
I make no apologies, this is me
Oh-oh-oh-oh
Oh-oh-oh-oh
Oh-oh-oh-oh
Oh-oh-oh-oh
Oh-oh-oh, oh-oh-oh, oh-oh-oh, oh, oh
Another round of bullets hits my skin
Well, fire away 'cause today, I won't let the shame sink in
We are bursting through the barricades and
Reaching for the sun (we are warriors)
Yeah, that's what we've become (yeah, that's what we've become)
I won't let them break me down to dust
I know that there's a place for us
For we are glorious
When the sharpest words wanna cut me down
I'm gonna send a flood, gonna drown them out
I am brave, I am bruised
I am who I'm meant to be, this is me
Look out 'cause here I come
And I'm marching on to the beat I drum
I'm not scared to be seen
I make no apologies, this is me
Oh-oh-oh-oh
Oh-oh-oh-oh
Oh-oh-oh-oh
Oh-oh-oh-oh
Oh-oh-oh, oh-oh-oh, oh-oh-oh, oh, oh
This is me
and I know that I deserve your love
(Oh-oh-oh-oh) 'cause there's nothing I'm not worthy of
(Oh-oh-oh, oh-oh-oh, oh-oh-oh, oh, oh)
When the sharpest words wanna cut me down
I'm gonna send a flood, gonna drown them out
This is brave, this is proof
This is who I'm meant to be, this is me
Look out 'cause here I come (look out 'cause here I come)
And I'm marching on to the beat I drum (marching on, marching, marching on)
I'm not scared to be seen
I make no apologies, this is me
When the sharpest words wanna cut me down
I'm gonna send a flood, gonna drown them out
I'm gonna send a flood
Gonna drown them out
Oh
This is me

Songwriters: Justin Paul / Benj Pasek
This Is Me lyrics © Sony/ATV Music Publishing LLC, Kobalt Music Publishing Ltd.


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