Friday, December 11, 2015

4 Weeks in the Hospital 3 more to go!

Hayden is becoming an eating machine!  I would have never thought to dare say that.  Nor did I ever think that it I would feel that the time was going by fast.  The prayers being offered on our behalf are felt as they strengthen and lift us to continue on this journey.  

Hayden has mastered several puréed foods, yogurt, sweet potatoes, apple sauce and peaches.  He is still working on green beans and many more veggies, meat and fruit.  He has also discovered that he loves bread and butter.  He has also eaten cheese cake, a chicken nugget, deli meat and cheese sandwich, chocolate cake, waffles, pancakes and grilled cheese.  We came in only eating chocolate and chips.  Not well with either and vomiting regularity in social eating situations with lots of distractions. 

He is developing more oral strength and the gag is desensitizing.  He still gags occasionally and we are slowly building his skills and confidence.

We started the week with a welcome visit from extended Batimore family.  We so rarely get pictures of Garrett not because we don't cherish this little guy but because he is now a wild little almost 3 year old.  Center of our attention.
Hayden made his first menorah to wish our Jewish friends a happy Hanukkah.
Monday set the tone for a fantastic week with this visit.  
Enjoying the beautiful decorations at the hospital. 
Hanna was invited by the behavioral child psychology group to help participate in Hayden sessions.  The goal is to make us successful at home and in our normal environment.
Reading the Little Engine that Could.
We found the children's library where we took a break between therapy sessions for a quiet moment.

Every day this cute girl takes time to do her homeschool work to keep her on track so she can return to her class at the start of the year. She has sacrificed being away from her friends during this holiday season. She sure does miss them.
Although she didn't get to perform any school productions, she got to perform centerstage at the 15th annual Kennedy Krieger Institute Christmas party.
All of the children had a wonderful time and got presents from Santa and a visit from the Orioles baseball team mascot.

She loves the fun and attention she has had at KKI.
Today the kids made me a special pancake breakfast. I could hardly believe what I was witnessing and tasting.

It was a special treat to have Hanna participate in the therapy sessions the last two days. We were surprised to see Hayden have so much progress with his big sister. It ended the week on an extremely positive note.
Taking a few moments in the meditation room to pray, ponder and reflect on our experience here.
Hanna is keeping up on her most important reading.
That's a full mouth of self made grilled cheese sandwich!
This week has been fantastic!  
We were saving the trip to Hershey, Pennsylvania for a celebratory graduation trip. Since he has had such success, we're heading off tomorrow to celebrate early as everyone here advised us to go see the decorations at Christmas time.   

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