He has been taking special swim lessons with Pride Inclusive Sports http://prideincsports.org to help him gain confidence in the water and better body awareness. It has been working because he just started doing cannonballs and having the breath support to hold it underwater.
We left our home last night to the good care of my mom playing with the kids for the week. Hayden's teacher and therapist surprised us with hand made t-shirts for all of the kids to wear that say Team Hayden in orange and our friends surprised us with sweet notes all over our trees, door, and yard. Hayden and the kids loved it and it was the last thing he talked about when he fell asleep last night.
He is a rockstar! He was all smiles.
Hayden arrived for surgery today at 5 and it is expected to last until 5. Surgery didn't start until 8 as they placed a central line and an epidural for pain. We know he is in good hands with the two best pediatric urologists working together on this long procedure today.
We have the privilege of staying at the Ronald McDonald House this time. Scott and I will take turns with Hayden while the other rests. We will get to sleep at night and be fed by many wonderful volunteers and organizations.
The flowers were beautiful at the entrance of our stay. There were fresh flowers on all the tables when we got to the room. This particular room happens to be my lucky number. It also is the first room we have ever had with a kitchenette. The room was decorated in Disney with plenty of pictures and toys. Hayden was very excited to stay here. They had a great gift bag for him when he arrived with a handmade baseball quilt.
Thank you for the love and support for this next part of his journey.
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