Stem Cells here we come on the 26th!

I have been mulling over in my mind for weeks what to include in this post. Monday we're leaving for our trip to Nova Cells Institute and taking the children on a 20+ hour drive to San Diego. We are overjoyed with this opportunity. Traveling with our family takes on a completely different meaning than most.  Flying has become too much of a difficulty with our family packing mobility aids and medical equipment along with renting an accessible wheelchair van. I know, traveling with children is never easy but all along our route on our drive we will need to find locations where we can catheterize Hayden every four hours. Gas station restrooms are not the most sterile of environments, so simply looking for a filling station takes on a different and new meaning. 

We are also overwhelmed with the outpouring of love and support that we've been shown. After countless prayers and endless medical research we feel comforted that were doing what is best for Hayden. Although we did not fund raise the full portion of the $16,000 treatment, we feel blessed by all of those who so generously contributed and sponsored as a pioneer to stems cells healing Hayden through gofundme. This stem cell treatment will be the first of several treatments that he will need over the next few years where we believe the benefits will motivate/validate us in fundraising.

We have been accepted by a nonprofit group,Warrior Family Beating Spina Bifida.org. They will be able to accept donations on Hayden's behalf that will be tax-deductible. We hope that if any of you know of any companies/individuals that maybe wanting to sponsor Hayden to let them know about this great tax deduction. This nonprofit provides financial assistance and support to families who are in constant need of medical treatments, therapies, medical stays, equipment and anything related to this serious birth defect that is not covered by insurance. They have also sponsored us on a Sea World trip while we are in San Diego. Tax Deductible Donation site for Hayden. Be sure to note that it is for Hayden Trigg.

We have seen so many miracles in the lives of these children that have undergone the stem cell treatment as it has affected each of them differently based on where their body needs healing. I will be doing my best to post and upload and document throughout this process. We have several before videos to serve as an assessment from Hayden's Physical Therapist and Occupational Therapist prior to undergoing the treatment. He has also undergone a complete 2.5 hour urodynamics study at the hospital through his Urologist to measure his bladder pressure as well as his output capacity prior to the stem cell treatment. He will again be receiving full assessments upon our return by his Urologist, Physical Therapist, Occupational Therapist as well as his Neurosurgeon & Dr. of Physical Medicine. We have notified every doctor on his health care team including his Pediatrician so that they may measure the improvements as they may be related to the stem cell treatment not being simply anecdotal.  As we moved into our new house, we do not yet have internet so uploading video is not very easy at the moment.  But stay tuned, you will see some great before and afters I promise to not disappoint!