Day 2 tethered cord surgery

Hayden is my hero. Today was a tough day for Hayden. He felt a lot of pain. He had a fever for most of the day & complained about a head ache. Neurosurgery thought he should have a shunt flow series done as well as a MRI. Results to follow.

He has been receiving excellent care. With a visit from past Dell hospital employees & friends Lei, his physical therapist Doug, and his home health nurse Heather (that also works at the hospital). His presents and balloons continue to increase. Adding to the collection is the Thomas the train and Elmo balloon. He was most happy about all the tattoos he got today.

His hospital nurse has a busy schedule. She's in charge of managing his tube feedings and venting, his bowel management, pain management, catheterization, and wound care. I try and mainly focus on hugs & kisses & entertainment while I try and let the hospital work on the rest.